Birthday and Pacing Myself

Lovely yoga time with my friend.
Special entrance to the fitness club.

Well. Already wrote this post and everything was lost... rewriting is a little brief.
Days have flown by.

Birthday treat.

I'm alive.
I'm swallowing food, mostly, mornings are hard but by dinner I'm doing better. Couldn't swallow my supplements this morning.
Today was a little challenging.
My body reminded me to stop. right. now. today when I went to a conference.
I enjoyed a morning workshop, presented about creating a reading classroom community and booktalked 70+ books in 55 minutes, and then I enjoyed watching wonderful authors receive book awards and share wonderful thoughts... After an hour, sitting in a chair was not agreeing with me. Very frustrating. I got up while the keynote speaker shared. No resolving pain or exhaustion. Went and found a couch on the other side of the building. Laid down. Took about an hour to feel ok. A catering staff person brought me water. Another person asked if they could call anyone. Then they gave me lunch early... I ate a little bit and felt a tiny bit better.

Special birthday flowers from a friend.

Special birthday flowers from family.

Went and said hi to a few beloved authors and quickly got in my car and drove home. Felt strong enough and wasn't in as much pain/exhaustion by that time. Rested pretty much the rest of the day.
Got thru the past 9 days ok. On Monday I saw a genetic counselor (mostly a waste of my time, useful for my family hopefully) and also my naturopathic dr. He didn't have much to suggest for me with the swallowing and such, just wants me to get to another oncologist to get a second opinion, that's happening in a few weeks.
Enjoyed work even with training interruptions. Appreciating not just being a cancer patient there. I'm a valued staff member. Most of my coworkers know how I am with the medical situation but they don't dig too much, just a good caring group. Love that kids are smiling when I come in the room now to teach... Also appreciated a birthday serenade from a class of first graders- good friend made sure people knew it was by birthday... I shared it with anyone I was walking around with, never been one to be quiet about celebrating my birthday.

Birthday dinner time with my love.

Enjoyed family dinner time. Went to Pastini's and actually ate everything on my plate. Including tiramisu cake...
The next week is full of medical stuff.
I'm seeing a radiation specialist on Tuesday and Thursday I see a gastro-enterologist and oncologist. Then Friday I get Avastin again.
Still learning how to read my body and be patient with myself... since my body seems to be changing, I feel a bit unpredictable.

Love my present from a former student who runs Cranes of Hope.
Lovely blessing for my car.

Thanks for journeying with me as always...

You're turning the corner, I know it is hard

Love my lunch duty time because I can see
such beautiful living things.

I haven't thought about writing much recently. This week has been a little challenging for me. I'm so grateful I had the previous week off. This past week I had 4 evening activities. Two were "goodbye" dinner events which are really hard for me. I don't enjoy goodbyes. I feel socially awkward in them usually. These two events though included some really interesting conversationalists and also some dear friends sitting close which made them special... and a little harder in a way. I was pretty much plugging my way thru each work day with patience. I love school. I've mentioned this before. I love students... they gift me energy and love...

For now though, I'm just fatigued. I've been dealing with some disturbing sleep patterns that I haven't had before where I fall asleep but can't sleep more than an hour at a time without waking up. And falling back to sleep is harder that I've experienced before. And the dreams I'm having are weird and vivid where I'm working out someone else's worries and concerns. For example: One dream I've been having for multiple days is about a woman who did testing on whales of some sort and realized that the testing was emotionally disturbing them so they were beaching themselves. I dreamed about the aftermath where she was heartbroken and having to defend herself. ... so just weird. So serious.
I'm taking it easy and napping a little bit since I'm in the middle of a beautiful long weekend.

Student led conference included science electricity demonstration.

My kiddo is having a terrific weekend... a little time with me and a chance to go to a movie together (Tomorrowland- pretty heavy handed with message but decent enough flick) and enjoyed a little time together but he's mostly away at wonderful friend's homes at sleepovers. Glad my husband and I organized them. Kiddo told me today he just cannot wait to move home to Oregon but he regrets that all these good friends he has now will be left behind... glad he's so reflective, good kiddo.
My husband is away in the Philippines scuba diving, really happy for him... glad he has this opportunity. Miss him though, been a long while since we've been apart for days.

I've had a little time to watch the Hay House World Summit movies... E-Motion, The Shift, and The Tapping Solution are the ones I watched today. Such interesting creations reflecting on the emotional state... appreciate them. They're free for around one more week. Hooray for free healthy resources. Grateful.  https://www.hayhouseworldsummit.com/lessons/the-tapping-solution/
http://www.thetappingsolution.com/

Trying out tapping actually started to distract me from my frustrating side pain and stomach pain I've been consistently having. I also started having back pain, perhaps because of all the bed rest. I went to get a massage (one more prepaid massage left!) and the therapist said to me "so you're getting fat". I chuckled at this for a while. Told her that I actually am trying to gain weight and that my Dr. is concerned that I'm not gaining weight. She was astounded. Funny how someone who works on bodies would state this or be surprised. I carry my weight in my legs, that's where she was looking. Still funny to me. Told a friend about it and she told me about how when she lived in Ghana it is traditionally the greatest compliment for someone to say that you are fat... that would be quite the thing to get used to!

Went to my oncologist yesterday and he told me I should be feeling better. That he thinks I've reached the turning point of this last round of chemo... shall see. Love that he also said "I know it is hard for you" and did the heavy hand pat on my back on my way out of his office, he's a good guy, shall miss his support. I can tell that I'm better than a week ago but the pain in my side is really distracting me, can't just ignore it sometimes... and no way to massage the area.

Was interesting when someone asked me the other day if I ever slow down. I didn't realize I was giving that impression of busyness anymore. I'm still blogging and working but really, I'm so much slower and more purposeful with where I put forth my energy... not sure why it came up. Maybe the person was trying to measure herself to me? Doesn't really matter. I told her that this whole diagnosis experience has made me slower and careful about pacing myself...

My dog can still hear loud thunder and lightning.
There have been many storms recently. Poor girl.

I'm working on the transition moving home. My important things were to connect with an oncologist in the US and get insurance for the few months I'm not covered by either job. I figured out insurance now and also contacted the oncologist I feel confident going to see... I have a load to "to do" things to do here before we move like getting a background check done with the Hong Kong police to show I'm clear when I'm back in the US... also I have to deal with various financial things- taxes, retirement paperwork, and more. Trying to just pace myself and get things sorted carefully. Things will work out eventually...

A friend shared this link on Facebook, really interesting to see which organizations own organic brands... kind of mind boggling.
http://www.washingtonpost.com/graphics/business/organic-brands/

Well, thanks for journeying with me. I'm taking things day by day as always... reaching deep in my toolbox for what will help me. Happy I am trying out tapping again. Happy days to all...

Did you just say "sewing machine"?

Another week buzzing by. Enjoyed these days at work and home...  Might be offline for a few weeks except a word here and there. Leaving my laptop at home while we travel this time. I'll have my iPad but am not as comfortable typing on that.

Grateful I booked an appointment with my acupuncturist on Tuesday. I was in a bit of pain in my back and chest. Plus my stomach wasn't treating me very kindly... the day after acupuncture treatment I felt incredibly better. Qigong that evening helped as well I'm sure... starting to make qigong part of my daily routine.

This afternoon I met the lymphedema specialist to see if there was anything I need to be concerned about or careful with and was quite reassured by the end of the appointment. I learned how to give myself a lymphatic massage and also he whipped out his sewing machine and created a compression garment that looks like half a corset made of stretchy fabric and foam cut to shape for my breast that has been painful since September. Just for sleeping though. Woo hoo to a solution that doesn't include something going over my shoulders. Thrilled. Presently I don't need to worry about my arm/legs but I need to be aware and careful of how they are feeling/doing.
If needed for friends in Hong Kong: Nathan Bridgeman was professional, thoughtful, helpful, and reasonably priced. http://www.cltvr.com.hk/mavista/cms/en/About_Our_Therapist
*I'm not quite over how quick he created the compression garment for me, this guy was a talented, experienced expert and I was thrilled to watch him make some of it on his sewing machine! Shall see how it helps me out. Doesn't feel like a torture device, just feels supportive. Plus, it was nice to work with an American who I didn't have to stumble with for communication...

There's nothing like having goals. Presently, there are many... but I'm not overwhelmed, yet.
First: trip to Bali. Grateful we were able to shift tickets and make this an affordable possibility. Especially happy that I have a break from treatment and can enjoy this with my family without being in a partial chemo stupor. (Fully admit, most of the first week of our trip to the Philippines I was knocked flat by chemo I'd received the day before our flight.)
Second: transition preparation. Getting thru paperwork. Getting thru purging. Going thru library projects so that things can be fantastic for the next teacher librarian and my lovely library assistant who has patiently dealt with project after project this term. I packed two boxes at school of personal items (bringing quite a bit less back to the US but that's ok). Going to begin using the postal system and mailing boxes home on a weekly basis.
Third: Chemo. Get thru the last to rounds. Meh.
Fourth: focus on the move to the US. We're down to 104 days until we're home. Wow. It is really going quick.

I'm trying to put cancer aside and enjoy the days. My husband did have to talk me down from a ledge last night when I started worrying about when I'd get the last two chemo treatments, etc. Shall see. He reminded me that worrying and wondering was useless until I see my oncologist in a few weeks.

Hey, there's more hair there!

It is funny to get so excited over hair. But I am. I got a little jolt when I noticed my baby fluff hair on my neck. Loved seeing my eyelashes back in full force. Nose hair? Meh, made me laugh. But having the hair on my head growing back makes me happy. It is odd how it is growing back but I see and feel curls! Hooray hair.

It is starting to hit me how much I will miss Hong Kong. I love the people I work with, they inspire me. I love my librarian friends, they provide such support, love and energy. I adore my Jewish community friends and am heartbroken to leave a community that I feel special and welcomed in... We have other wonderful friends that I'll miss too... Sigh. I know I've missed Oregon for the same reasons plus I miss my family a ridiculous amount but man, I will miss Hong Kong, it has embedded in me and there are so many things I think about on a daily basis that have helped me grow, stay calm, and learn over the past three years. Sigh. Had a good conversation today with my human resources contact who has helped me deal with the insurance nightmare and is quite kind and friendly... She was so relieved when she found out that I'm returning home to a job (I don't know what yet, but I'm hopeful/excited/happy) and that I'll have insurance. Yes, that is a big thing to be reassured by. She also liked that I'd be 5 minutes from my parents house... excited to move back into our old home... Very sweet woman. Appreciate the people that have been there for me and saved me over and over since August '13. 

I'm still glancing at my VirtueScope every day. (Helps to have it on the wall next to my side of the bed.) This is my month to focus on "resourceful"... Well, I've always felt that I'm pretty resourceful, but it has been a nice word to think about every morning. As a teacher librarian, I'm all about resources. As a blogger, I feel resourceful when I'm recommending books and websites and such. Hmm. Next month? Dignified. Hmm.

I sat down and counted out weeks. I've worked for 11 weeks now. Without needing to take a sick day. Wow. I didn't think that would be possible. Especially with still going thru chemo treatment in the beginning and all thru the darn radiation and side effects. 11 weeks. 5 1/2 weeks were radiation... After this holiday there will be 11 weeks more of work. Shall see how those weeks treat me. So grateful to my amazing recovering body. 

Well, thanks for journeying with me... shall try to post here and there while we're on this trip but never know about internet connectivity.

Radiation Plans plus Pacing

I love being back at school. I do not love the morning wake up. It is wonderful to see students again, colleagues, and have the chance to tackle projects... It is fun to teach and my colleages haven't pushed with expectations (thank goodness)- I'm teaching classes and appreciating a little work time here and there to do cataloging and projects.

We made a big decision that I shared on my other blog but not here yet... we are going to move back to Oregon in July. This is a very positive decision even though we are going to miss so many friends, connections, life here in Hong Kong... We know that without this third cancer diagnosis we'd be in a different place... but we're happy and excited about the changes, especially my son.

Now that I know we're headed home, I'm addressing all the projects around the library that have been put off. I want there to be a smooth transition with my replacement stepping in to that gorgeous setting without anything piled up...

Today my husband and I went to see the very negative radiologist. My husband has actually forgotten about meeting him before, I think this is because neither of us want to remember conversations with him, the most blunt person I've ever experienced... and I'm pretty darn blunt. I disliked all my past appointments with him but one thing is for sure, once I met with him, I felt confident that avoiding the local hospital was a good idea. This round of radiation is risky and worrisome and I do not want to risk my life in any way. The local hospital oncologist told my husband and I that he didn't think the radiologists would even be willing to radiate the area that needs treatment...

So. Radiation is next. This Saturday is my final (for now- 2 later) chemo treatment, just one drug, getting thru them. Not pushing myself. No fainting, a few moments of tiredness where I realized I needed to slow down but overall, getting thru work and home life. I'm taking advantage of elevators at work. Not walking the stairs as much. Walking up stairs tires me out more than anything else.
Radiation plan- much more money than past two experiences. This time the radiologist wants to go for six weeks of treatment. 30 LONG days...
Here's what he shared:
I have a connective tissue disorder, rheumatoid arthritis, that has created issues in the past. The first round of radiation for cervical cancer had to be ended early because of this. The second round for breast cancer wasn't shortened at all though... He's concerned with my ability to successfully get through this round since it is 6 weeks long, 5 days a week... and there could be "nasty reaction" to radiation since it could compromise my heart, lungs, esophagus, trachea, spinal cord... there could be significant side effects, especially my lungs since the radiation will be going through it. The area I'll have radiated is called the mediastinum... He said with the 6 weeks it would be 5400 radiation dose, normally the 6 weeks is a 6000 radiation dose but because of my connective tissue disorder he wants to be careful and do less.
Side effects he listed at this time are: fatigue, possible damage to important areas of body like heart and lungs, appetite decrease... I can work throughout the treatment though... the hospital is down the street from my school. For the last two rounds I walked for 14 minutes (timed it to a "t") checked in, had radiation, walked up to the other area outside the hospital where either I'd take a bus home - drops me off right near our apartment- or take a taxi if there isn't a terribly long line... Shall see how I do for this round.

My oncologist wanted to possibly have more radiated beyond the tumor which surprised me quite a bit. (supraclavicular regions) It was something new. The radiologist didn't want to do this due to my connective tissue disorder, I'll be checking with my oncologist when I see him on Saturday about this. It would be radiating my neck area on both sides... Hmm.

Here's some of the quotes from the radiologist I took down:
"We are trying to reduce the chance of cancer spreading.... Although, the chance of it spreading in your current diagnosis is high.... The objective of treatment is to control cancer and maintain your quality of life.... Chemo isn't curative for cervical cancer.... There is no cure for your stage of cancer..."

Gee thanks, thrilled to meet with you. Great for my attitude... and my husband's... not. Wasn't looking for a cure, moved beyond that word a long while ago...

I know my husband and I are both focused on the tumor at hand. Reducing it, getting rid of it. I know there are cancer cells bouncing around in my body. Obviously. They showed up in my lung for goodness sake. I also know that I'm trying my best to stay positive and have healthy practices with preventative practices as well...
Yup.
That's what I have to share today.

Enjoying the week at work... tired... glad I had qi gong last night with friends, learned a few new exercises that will be useful. Think my instructor is fantastic.
Thanks for keeping up on the journey with me, know I've been a little more quiet but honestly embracing my time at work and treasuring my time at home as well. Balancing in writing and journaling when I feel like doing so...

Update Squeaking in #14 and Heading OFF

My kiddo's art, surprised me. Love it.

So excited for the holiday!
Happy that I got into work for three days. Think that I've gotten over the weakness stigma that I was judging myself with for taking sleep medication- what a godsend it is. I really needed sleep Wednesday night after having one of those "can't believe I have insomnia it isn't the first day of school for goodness sakes" the night before...

I've really missed my coworkers. Many leave mid year, mid term, etc... it isn't that they don't love Bradbury, just the life of teaching in a school filled with many expats (many locals as well). I was so grateful for my supply teacher/substitute, she was so wonderful, organized the library with a new set of eyes, got projects done that brighten up areas that needed brightening, and took care of my wonderful staff and beautiful students... So grateful I could simply walk in and teach Wednesday-Friday. SO lucky I am. And my school.  So it was terrific to be back. I chatted with someone and agreed that the true test of my energy will be in January when I'm coming back after treatment on Saturday and work a whole week. As long as I don't feel overtaxed or such, I'm going for it, I'm working... BUT I'm watching myself carefully. Today I had to run to catch a bus and still had energy for that but never know. Grateful for every minute I have.

Debbie, how did the kids/staff react to your hair/wig? All support and respect from staff... they're lovely. Kids are brutally honest but I was ready. "Mrs. Alvarez you look so different!" "Mrs. Alvarez, what happened to your hair?" "Mrs. Alvarez, your hair looks weird." "Mrs. Alvarez I missed you, I know you've been sick, what was wrong?"
My reaction? I said to the wig/hair comments: "Well, this is my hair now and I'm getting used to it, it is what I have and part of me." They seemed to take that well enough. My answer to the what's been wrong, here's what I said to my students: "I've been sick for three stinky months. I did not like it. I'm not quite strong like a superhero yet but I am strong enough to see and teach you, so I'm happy to be here." The kids who pushed further got a "I really don't want to talk about that personal information." - I've learned over the years with sweet kiddos that you don't leave the door open for further questions, just flat out say what you feel and they'll stop. I'm respectful and redirect the conversation afterwards. Some of my students know I had cancer, they think it is lung cancer (because that's what it was diagnosed as when I left work, that's ok, do they have to have those details?) Some of my (honestly) favorites really learned the truth and handled it quite well and just asked some thoughtful questions about how I was feeling and told me they missed me... I only saw half my students this week, will catch up with the rest after the holiday.

#14 Treatment sucks as always (what's new, right?). My concern about my half-covered-with-a-bruise hand wasn't necessary since I'm alternating hands. Keeping up with the topical bruise medication... One of my favorite nurses was quite pleased with the vein she used today. Who knew veins would be exciting. My hands aren't happy presently as I'm using much much much hand sanitizer but I'm also using some terrific hand lotion from many thoughtful friends who just knew what I needed. Only one drug this week... and flying out. Can't wait. Can't wait. Talked with my oncologist further about what would happen with treatment... two more- those Saturdays after the holidays. Then a BREAK. Then radiation. He said "We hope to get rid of the rest of the cancer with radiation." I'm trying to be confident about going back into that tube. It was painful and I'm a little concerned about how my throat/bronchial tube will react to getting zapped... plus the past radiation area will be touched as well which isn't thrilling. Shall see. Then after radiation, if I'm strong and can handle it, "clean up chemo"- two more treatments just three weeks apart and then shall see if there is further prescriptions he wishes to give me. So I see a light. I see 2 more chemo rounds, radiation and 2 more chemo rounds- that means 4 more times I'll be stuck with that long needle in my hand/arm. I can accept that. I'll work hard so my body can also accept it. I'm feeling stronger this week. A little wiped, a little excited about the holiday, and happy about seeing students and staff. My administration has been respectful, bluntly honest and concerned, but respectful. I've hit them with another thing that I'll share soon enough and they've been kind and patient. I'm so so so grateful for the situation I'm in. I read about others dealing with cancer who don't have the support I do.

Grateful for all the support online, wow. I feel so lucky and loved... and grateful...

I subscribe to Soul Pancake- YouTube channel- have subscribed for a long time and LOVE it. L-O-V-E it... when I have time to watch it. I came across a new series they're putting out, below are the first two. Short 3 minute-ish videos. So honest, raw, humorous, touching... love them.
Highly Evolved Human:

Also appreciated this 60 Minutes report on Mindfulness- my mom sent my way, thank you Mom!! :)
http://www.cbsnews.com/news/mindfulness-anderson-cooper-60-minutes/

Finally, I also read this post by a Cancer Survivor/Thriver- 13 Ways I live my life with purpose after cancer:
http://www.huffingtonpost.com/tamika-felder/13-ways-i-live-my-life-with-purpose-after-cancer_b_5241858.html
I agree with every single item on her list but disagree. I live my life with purpose during this triple hitter cancer experience, it is imperative to have goals and be purposeful. My husband told me the second day after I returned to work how happy he noticed I was. How much more active I was than other days... Today was a harder day (treatment sucks). I enjoyed work but was honestly grumpy and a little snappy during/after treatment. This is due to leaving my safe cocoon... I've picked myself up by looking at happy "stuff" that refocuses me to the positive... Can't live in that negative. Finding my moments...

Feeling the love from my students....

Get well card book given as well... so touched.