Birthday and Pacing Myself

Lovely yoga time with my friend.
Special entrance to the fitness club.

Well. Already wrote this post and everything was lost... rewriting is a little brief.
Days have flown by.

Birthday treat.

I'm alive.
I'm swallowing food, mostly, mornings are hard but by dinner I'm doing better. Couldn't swallow my supplements this morning.
Today was a little challenging.
My body reminded me to stop. right. now. today when I went to a conference.
I enjoyed a morning workshop, presented about creating a reading classroom community and booktalked 70+ books in 55 minutes, and then I enjoyed watching wonderful authors receive book awards and share wonderful thoughts... After an hour, sitting in a chair was not agreeing with me. Very frustrating. I got up while the keynote speaker shared. No resolving pain or exhaustion. Went and found a couch on the other side of the building. Laid down. Took about an hour to feel ok. A catering staff person brought me water. Another person asked if they could call anyone. Then they gave me lunch early... I ate a little bit and felt a tiny bit better.

Special birthday flowers from a friend.

Special birthday flowers from family.

Went and said hi to a few beloved authors and quickly got in my car and drove home. Felt strong enough and wasn't in as much pain/exhaustion by that time. Rested pretty much the rest of the day.
Got thru the past 9 days ok. On Monday I saw a genetic counselor (mostly a waste of my time, useful for my family hopefully) and also my naturopathic dr. He didn't have much to suggest for me with the swallowing and such, just wants me to get to another oncologist to get a second opinion, that's happening in a few weeks.
Enjoyed work even with training interruptions. Appreciating not just being a cancer patient there. I'm a valued staff member. Most of my coworkers know how I am with the medical situation but they don't dig too much, just a good caring group. Love that kids are smiling when I come in the room now to teach... Also appreciated a birthday serenade from a class of first graders- good friend made sure people knew it was by birthday... I shared it with anyone I was walking around with, never been one to be quiet about celebrating my birthday.

Birthday dinner time with my love.

Enjoyed family dinner time. Went to Pastini's and actually ate everything on my plate. Including tiramisu cake...
The next week is full of medical stuff.
I'm seeing a radiation specialist on Tuesday and Thursday I see a gastro-enterologist and oncologist. Then Friday I get Avastin again.
Still learning how to read my body and be patient with myself... since my body seems to be changing, I feel a bit unpredictable.

Love my present from a former student who runs Cranes of Hope.
Lovely blessing for my car.

Thanks for journeying with me as always...

Glimmers, noticing them

Tuesday afternoon:
Having glimmers of hope here and there.
Talked with a oncology nurse who is also an advocate about my case. It was enlightening.
I learned that I might not have to go thru a study to get the immunotherapy drug I'm interested in.
I learned that I might be able to get financial help to take the immunotherapy drug I'm interested in.
I learned about genetic testing/Foundation I testing to analyze exactly what is going on with my tumor(s) especially after a second cancer diagnosis.
Link to info on Foundation I testing:
http://foundationone.com/docs/FM_SpecimenGuidelines_2015-03-17.pdf?__hstc=197910000.ca54bd200688390fb3cfffed497960ad.1401198872498.1432697851762.1432747722833.28&__hssc=197910000.2.1432747722833&__hsfp=196914911


Talk about a turnaround.
I talked with a radiation oncologist today and appreciated every minute. Didn't expect to say that, but I did.
We talked about many things.
The big thing that resonated for me was that she would not want to radiate my tumor area until a year has passed from the past radiation treatment site. A year. Yes, that means the tumor is growing and worrisome, but a break from radiation. I can fully accept this.
She said if there was an increase in symptoms from the tumor then she would probably change that plan- symptoms would include a dry cough, blood cough, obstruction leading to a collapsed lung...

She plans to refer me to a genetics counselor. She said "Honestly, any time a patient has more than one cancer diagnosis, we send them to a genetic counselor." Ok, sounds wise to me...
I appreciated knowing that it is highly unlikely that I'll be dealing with an operation anytime soon. Instead I'll probably be dealing with the following things:
In August:
CT with adrenal protocol to figure out what is going on with my adrenal gland
Tissue biopsy for my tumor in my chest
Other possible tests...
In September:
Possibly another PET scan
Genetics counselor

Watching Highly Evolved Human episodes always makes me smile. Appreciate the perspective... This time he shares about how having a job was so liberating in the middle of his chemo treatment. I get that. It wasn't good for me to be home for so many months... I love being around other people and having a purpose beyond being a "cancer patient"...

I went to a link today that is a "why not?" one: blue water:

http://beforeitsnews.com/alternative/2015/07/blue-solar-water-heals-the-body-and-spirit-here-is-how-to-make-it-3191218.html
Looks like a healthy way to have a different type of drinking water! Thanks for the heads up about this Lenore! :)

Friday more thoughts- 
Ok, a few thoughts and communications have occurred.
The board met and talked about my case more.
They said that the adrenal gland and lymph nodes will be their focus presently. They want to get a biopsy of my adrenal gland and do a mutational analysis of the cells.
Then I will need to meet with a medical oncologist who wll assess targeted therapy options for me (chemo). They might want to assess whether the adrenal gland needs to be removed.
I'll also eventually see a genetic counselor (at the end of September, nothing seems to move quick here to be honest, ech.)
I'll also see a research medical oncologist eventually who will be analyizing the mutational analysis results from the adrenal gland biopsy.

Their big question is what the relationship is between the tumors- cervic, breast, lung, lymph nodes, adrenal gland... I feel like quite the case study.

Thanks for journeying with me...