Sunday, March 8, 2015

Little update plus traveling down memory lane

Enjoyed the weekend, had many restful moments and happy moments with friends and family.
Saw my magician, oh, I mean my oncologist.
He pulled another rabbit out of his hat.
He didn't quite expect my reaction.
That's ok.
So, when I went in, I looked at my lung x-ray with him. It was fascinating to see how my body has recovered since September with the operation/missing part of my lung. It was a relief to hear that he didn't see any damage to my lungs from radiation.
Then, I chatted about what his plans were for me... he wants to wait 6-8 weeks to do the PET scan because if we go too soon, there could be false positive results. Sigh. That brings me to MAY for chemo. I just want to be done already. This is costly. It is stressful to deal with the insurance game. And I might have to lose my hair once again... well... I'm not thrilled.
I responded with those thoughts to him (with my eyes filling up with tears) told him that this has been so hard so far... He said that he didn't necessarily think he would use the same combo of drugs with me for the last two rounds of chemo. He might use drugs that don't make hair fall out... does this compromise my health/future? Hmm. He also mentioned that he might not even want to do the last two rounds of chemo. All depends on the PET scan.
He gave me a referral letter to see the lymphedema specialist. Shall look into that soon.
He recommended I take an anti-inflammatory for my neck pain. Shall look into that tonight.
Sigh. Hate taking drugs but I'm still in pain and it has been 5 days since my last treatment.
I'm grateful for the break. From operation to chemo to tomotherapy/radiation this time has been really challenging. I'd like to build myself up a little... get more stamina... recover from the pain in my chest... get thru these side effects.

Got to meet up two special friends Saturday... A special author friend is visiting right now... Seeing her felt like family coming together again. Very happy to see Lenore. More time will be spent together soon, so excited and grateful for the time together...

Today, I spent the morning among wonderful loving people. Good friends to chat with... good time with my son and husband too. Today, I pulled out this old thumb drive that was in my work desk and opened it. I haven't lost everything when my computer died after all. At least I didn't lose everything from 2012 and before. But since 2012... it is a toss up. Sigh to my writing. I must get over the loss of all the documents and sit down and work on my manuscripts again. It is a goal. My husband surprised me today with the gift of an external hard drive. Shall work on proper backing up on files for the future. Sigh to that learning experience.

Appreciated my husband's reminder that some images aren't as lost as I thought. Looked through all my old emails I sent month by month for my son's first few years. Made me so happy to read those old updates. Kiddo sure has grown a lot since those emails and images.
Ready to enjoy a week at work. Thanks for journeying with me....
Happy day meeting up with Lenore...

7 comments:

  1. journeying, journeying. Hoping that you might get some surprisingly good news and a PET scan that shows you need NOTHING more than love and healing right now. Standing in tree pose for you daily... and all that means.

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  2. The waiting, the waiting, the tests, the results, the surprises, the changes, the radiation, the drugs, the waiting, the yuk, aye yie yie, it is amazing you are still sane and rational and able to inform so many people as you go. Molto loverino xxxx

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  3. Yay Lenore visits!!!!!! You look so happy Debbie, makes my heart swell. I wanna hug Dr. L. too. Well we shall see with PET scan. Keep up qui gong and yoga. Love you lots and lots!!!! Xoxoxoxo

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  4. That is indeed a journey, and you have been traversing it real well, and with the bestest possible company you can get. I think it's really nice that you have the best support system in tow. Just keep on to your disposition and you'll ultimately be able to restore all the things you might lose in that process, right down to your hair. Thanks for sharing that! I wish you all the best!

    Byron Brewer @ Knight and Sanders

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