Well Darn. That explains a little.

I just adore my guys...

Today is Yom Kippur.
Today is my husband's birthday.
Today I couldn't swallow.
Seriously.
I've had trouble swallowing for weeks now. Keep saying I'm having trouble. Had nausea because of it I think.
So.
I got up to prepare to go to services for Yom Kippur this morning with family.
Got ready feeling a little shakey but ok overall until I finished taking my supplements and went for a bite of food. It felt stuck in my throat.
I told my husband, "Something's really wrong." Laid down on the couch. Didn't help.
Laid down in bed. Said sorry to family about missing services- glad they went without me.
After an hour I wrote my oncologist's office.
Said "I can't swallow and it is weird."
They called within a few hours.
Told me to go see my primary care physician. He was available so I went to see him mid-day.
He was concerned. I've lost 7 pounds in 2 weeks. Seriously. So frustrated about this.
He said, "Well, we have a good thing, you can still drink liquids, so you can gain weight with liquids." Yeah sure. Man, I LOVE food. I'm not pleased.
He sent me for an x-ray to see if there was some obstruction. Couldn't see anything on the x-ray. Found my scan interesting though since my internal organs have shifted a bit since my lower lung on the right is gone.
He told me I had to get a CT scan with a contrast = needle.
He performed a miracle and got one for me an hour later.

Quiet waiting room for my mom while I got the scan.

Then his nurse performed a miracle and got my insurance to approve of it within the 40 minutes it took for me to get there with my mom (I picked her up, needle = I want my mom!!! Or a loved one for support!)
The center I went to was terrific. NOT a hospital. All they do is scans, they are focused on you. That's the way to go in my opinion.
The wonderful person was able to get a line in me, quickly zip me in and out of the CT machine, put the contrast in me, again zip me in and out of the CT machine and I was done.
I've been avoiding scans.
Last week my physician's assistant (who I loved) really wanted to scan me right away but I told her I really didn't want more things zapping me/being pushed into me... can't avoid it now Debbie!

Got home.
Watched the end of the documentary on the comedian Tig on Netflix- I recommend it, loved it.
Snuggled with my dog.
Got the call.
My primary care physician called me and gave me news.
Blech.
I should have called my husband in and put the dr. on speakerphone.
Didn't realize the brain dump I'd receive... good Dr. though.

So, the tumor of my lymph nodes that was always near my esophagus/heart that was 1.5 cm or so is now 3 or so cm. It is like a little cluster of grapes going down my esophagus and ending near my stomach. There are many enlarged lymph nodes...
They could be going into my muscle wall of my esophagus and slowing down my swallowing.
This could be the reason I've felt pain in my chest, this could be why I've been throwing up, this could be why I feel like when I swallow food is stuck when it gets down to my chest, this could be the reason I've been nauseaus, this could be the reason for many things. Sigh.

The doctor then went on to say that since surgery has been ruled out they probably will discuss radiation. If I continue to worsen, I'd need to have a feeding tube... seriously!! That blew my mind.
Not happy.

The doctor said he'd be calling my oncologist/physician's assistant in the morning and discussing my case and then someone will contact me with more thoughts.
So.

I was not thrilled.
It is Yom Kippur.
It is my husband's birthday.
We went over to my parents and had a party for my husband.

My husband's kind of birthday cake- pumpkin pie!!

We had fun.
We laughed.
I ATE FOOD.
First I ate my mom's homemade matzoh ball soup. Felt fine.
Then I ate some avocado. YUM.
Then I had a few pieces of cheesy bread, because I wanted it.
Then I had a piece of pumpkin pie. Because I could.
Then I had a chocolate chip cookie. Because YUM. It is my favorite treat.
Then I had some grapes. Because I could.
So there. I ate. I didn't gag. I didn't throw up (I did throw up last night when I tried to swallow some supplements, it just isn't happening at night).

I love my sister and brother-in-law, they make me laugh and share
share so much love and happiness with everyone...

I ate.
I will give myself time.
I will get up earlier so I don't feel rushed.
I'll eat softer foods.
I'll boost my weight.
I will not deal with a freaking tube (I hope, stubborn Debbie digging in her heels.)

I'm sure I could turn this into a Laura Numeroff story- If you give a mouse a cookie... but naah.
I ate. That's enough.
My family is the best.
I love them.
I'm so lucky.
I'm so glad to be home with them.
My parents saved the day with our kiddo.

My parents are the best. Seriously.

Nope, we didn't plan the Peanuts matching gear. Just how we think.

My husband was able to recover from an interview, flat tire, and get home without worrying about our kiddo thanks to my dad picking him up...
My mom was there with me for the scan. The nurse said "You have a really sweet mom." And I said "Yes, yes I do."
I feel so lucky.
Thank you to all my family and friends who are pulling for me and praying for me. I appreciate it. I feel the support. Even in those low moments today, I know I'm loved and supported.
Thanks for keeping up on my journey. The ups and downs of it. Thanks for reading my long drawn out journals. They help me think out things... and hopefully help wonderful people understand what's going on...

Gettin' along

Buzzy smiling bees this time!

Well.
Been a over a week.
Doing better now.
Harsh lesson.
Don't be stubborn.
Don't be stoic.
If you are nauseaus and feeling shaky/weak for many days, something is wrong. Waiting just one more day to see if it goes away isn't wise at all.
I went after 8 days feeling terrible to the doctor.
She lectured me about simply calling and getting advice at least.
She told me that I needed to even email if I need help.
Sigh.
I know this.
I'm capable of asking for help.
Do I do so? Sometimes? NO. I'm darn stubborn.

So, anti-nausea medicine is a godsend when needed. As is cough medicine when needed.

I'm actually sleeping ok and stomach isn't terrible- it doesn't love anti-nausea meds but that's life.
Pain is actually ok overall. Sort of like arthritis pain in my chest and back. I can deal with it and if I'm hurting? Tylenol has simply been enough in the past days.

My dr. thinks I might have heartburn so we're trying a few tablespoons of apple cider vinegar at night to see if that will help me.

Also drinking warm happy lemon water with honey thru the day to help my throat out.

Chemo/Avastin went ok. Bruise from the needle looks hideous. Thank goodness it is long sleeve weather. Shall bring up what happened next time. Harumph. Haven't had a bruise like this in a long time and I honestly know exactly what went wrong.

My sweet snuggler

My dog is doing ok. She's gettin' along and snuggling with us like the beautiful soul she is.
My kiddo is settling into school ok overall. Grateful.
My husband is dealing with many job interviews. We have hope.
Birthdays are upon us. Husband's is first, which he really doesn't want to celebrate much.
Then mine next Friday. I'm all about saying HELL YEAH I'M STILL HERE AND LOVING LIFE!!! Here's to turning 42 without chemo or a hysterectomy on my birthday. Seriously. I'll take a peaceful, happy birthday. Enough already with the drama.

Feeling stronger on my end. I wrote my 1000th blog post on my Styling Librarian site. Feeling accomplished. Happy with what I do there.
Tired and know I am grateful for where I'm at...
Found a new massage therapist who specializes in cancer patients- pre/post/fighting, etc. She's lovely and likes essential oils, hooray.

New massage place

Appreciate the naturopathic dr. I found and the 20 mg. of Melatonin he prescribed me. Sleeping so much better than the past few years.
Enjoyed a new qi gong instructor and look forward to another class with her.

Grateful for my mom's support at chemo.
First time she could come with me.

My acupunturist said tonight, you're really getting your healthy ducks sorted out!
I also met with a Breast Friends support group. Lovely women. Good talk. Appreciated them telling me about the Dougie Center. http://www.dougy.org/  Not that we're dealing with death but they also deal with children who are affected by severe illnesses. Nice to know a resource, not that we find a need at the moment, but good to know it is there.

Still waiting on Foundation 1 testing on my tumor sample. I waited 3 weeks and then emailed since I was frustrated... they said they'd send when they knew anything.

Can't believe we've been home over 11 weeks and I'm not on anything I was hoping to be on. I'm happy I'm doing Mannatech and I have faith that it is helping heal my immune system, but man I'm annoyed with delays here in the US.

Hope everyone is gettin' along and finds those moments of joy all over their days!
Thanks for journeying with me...

Favorite book arrived from Hong Kong