Showing posts with label radiagel. Show all posts
Showing posts with label radiagel. Show all posts

Friday, January 30, 2015

Monday thru Friday thoughts

A lovely friend who has visited me multiple times over the past 6 months came and gave me bone soup and the brand new magazine- Healthy Living Asia magazine! I'm a print published book reviewer now! So exciting. I'm working on reading two books for the next issue... I also was interviewed in the magazine about this cancer journey, honored to be part of a very fascinating/worthy publication. Friends in Hong Kong, look out for this magazine, you'll love it!
Here's a link to see the cover and read about how my wonderful friend created the magazine with a fantastic team of people! http://thehkhub.com/featured-posts/healthy-living-asia-magazine/


Monday: Tonight I was listening to my beautiful sister sing (lucky me getting to do so) and then I started listening to other music on iTunes. I came across one of my favorite singers- Sting (we share a birthday, folks!) and listened to Seven Days... loved the storytelling of the song. Thought it was appropriate to listen to this when I'm working my way through the next 6 weeks...
Appreciating wearing my own slippers. Day 5 done. 25 is a smaller number... Will see how I'm doing by the end of the week. Was told I shouldn't feel fatigued already. Hmm. Also appreciated learning that my skin was being spared this time since they are aiming for the internal area but I was still allowed to use the Radiagel if I wanted. I said I would for my own mental stability. Nervous about germs at work. My assistant was home today with a fever. Wash, wash, wash those hands... Hand sanitizer galore... Plus some essential oil drops to defend against germs will help too!



Tuesday - Enjoyed taking time for Yoga Nidra this afternoon right before treatment. So kind of a friend to come by and read me through it. I plan to use the audio on my iPhone other days when I feel I need it. Celebrating small successes tonight. First qi gong session where I didn't have any thought or need to sit down. Baby steps of chemo recovery- noted. Radiation day 6 done, appreciating the lack of side effects so far (beyond fatigue) and carefully monitoring myself. One really heartbreaking moment that is weighing on me is learning that a former Oregon Battle of the Books colleague has passed away after dealing with cancer treatments for a really long time... heartbroken for her family. She was an inspiring, touching, kind person who gave her all to anything she committed to. Really loved working with her... so I'll be celebrating her life in my mind for a while ahead...


Wednesday - Got thru the day. Lovely walk with a friend down to treatment. Got thru treatment. Noticed that it had been a week since I've had a bloody nose. Wow. That's another baby step recovery from chemo...

Thursday - Thanks to two friends for walking with me... Another day, enjoyed family time in the evening, especially snuggle time with the kiddo. He and I are really enjoying the novels we're in the middle of... Had another revelation... tried a new toothpaste this past week (Sensodyne) and FINALLY after 4 months I'm not hurting where I have the receding gums... Actually being able to bite into things on both sides of my mouth is a beautiful thing to experience again. Around lunchtime today my heart broke again for an Oregon friend who lost his husband after medical struggles... Sending love his way.



Friday - Treatment number 9 done! Woot. 21 is a smaller number. Thanks to my friend for giving me a ride to treatment... Amazing how much easier it is with someone helping me get to the appointment. Grateful to realize this time, the last two radiation rounds were a blur but this time I'm certain I'm more positive. Shall see how next week goes. Today was dragging along. I know other colleagues were tired today as well. Shall see. Temp, blood pressure, and O2 level checked multiple times this week. I really appreciate knowing each time that I'm "normal". I went to an evening support group at CancerLink. We had an interesting presentation about something called VirtueScope- really appreciated the special ideas and insightful comments shared. It is a card game with different virtues to focus on throughout the year. I just love the perspective. Enjoyed discussions and the cards/depth of virtue ideas... What amused me- people's view of me - card pulled? Resourceful (yes, that's what I've been told...) I'm Pure-Hearted as my foundation for the year and driving force... ok. Dignified was pulled for what supports my pure-hearted foundation... I also appreciated that I share Determined with others - here's the card's explanation of determined: "Single-minded, yet flexible, I keep on moving with love and purpose towards my destination." Interesting to read- was told to post with all the months labeled for the year with a focus each morning to look at the virtue. Then at the end of the year the outcome for me would be Tolerant "maturity to let go of expectations and love to keep on giving." Loved the positive attitudes of those in the group. Had a fascinating conversation with one person from Washington who was diagnosed 15 years ago (stage 4) and told he had 7-9 years to live but has lived well for 15- and we have the same oncologist, grateful for the chat. Was reassuring. VirtueScope link for an online version: http://vscope.memebot.com/

Now excuse me while I watch the finale of Parenthood (sob)... I still love that show... Will probably watch the finale a few times before letting go...
Thanks for journeying with me.

Sunday, January 25, 2015

Four of Thirty Treatments Done

Supplements ready to be sorted.
Got thru the week. Can feel a little of the treatment effects so far but nothing painful. My oncologist warned me that I probably will be dealing with lack of appetite and acid reflux soon... shall see if that turns out to be the case. Staying positive as I can but also keenly aware of side effects. I started using Radiagel on my skin where I think the radiation is hitting- that was my mistake last time- forgetting to take care of my skin from the beginning.

Had to sort my supplements/medicine and couldn't believe it took 45 minutes. Glad to have them sorted for now. I take a lot of supplements and additionally Chinese herbal medicine...

I have another tattoo now- another little itty bitty dot on my left side so the radiation technicians can quickly know if I'm positioned properly. So I have a total of 3 tattoos now, sure they're dots but that's as much as I have the guts to deal with... :)
So I've been pretty fatigued this weekend, not sure if it is from being tired from work or side effect from radiation. I listened to my body though. Took naps, enjoyed family time, saw a movie, enjoyed date night time with my husband, and got to work on my blog for a little bit- happy to now be prepped for most of February. Gave myself permission to be brief on some posts...

Saw my oncologist on Saturday and he pulled yet another rabbit out of the hat. This time he told me that I might not get the other two chemo treatments right after radiation. He might wait until after I'm back from visiting the US for Spring Break... he kindly said that it would make it less of a burden while I'm on my trip... I just want to take care of what needs to be done. So... shall see. He said it depended on my reactions to radiation and if I didn't lose weight, timing, etc.

The visualization and breathing practice is helping me get thru radiation. Also my wonderful sister's special memory blog posts are picking me up each day and enjoying going back in time mentally with her...  https://startwithsparkles.wordpress.com/2015/01/23/piano/  Grateful for coworkers for giving me rides and walking with me to radiation... also grateful for those who have told me that they'll give me rides and walk with me- so kind... I certainly find that the help gets me to treatment. I also am thankful that when I walk into the clinic a little early I sometimes can get treatment a little sooner... Glad that I don't have to go on the weekends, that'd be abysmal. Thanks to all who have been commenting online, emailing me, etc... really is a lift.

Well... thanks for journeying with me... will likely be quiet this week unless something strikes me for writing...

Can appreciate wearing a hat.
Especially over wearing a wig. Tired of wigs.